Wednesday, 5 September 2012

3 week diary 3rd July - 25th July

3rd and 4th July
Chemo Tuesday and no problems to report.The cold cap was uncomfortable but the nurses were really pleased with the lack of hair loss so far. Am back on the steroids and buzzing again mind you cooker is now clean, cupboards are all clean well to be honest the whole flat has been cleaned. Tomorrow I have to go back to the hospital to have the Herceptin and how I am going to sit still for 6 hours I have no idea! 

5th July 
Had the Herceptin today and felt okay there were no reactions which is what they are watching and waiting for hence why you are kept there for 6 hours to make sure that you don't have any adverse side affects and if you do they can deal with it there and then. It was a very long day hanging around with drains in my arms bit I think Im getting used to that being the norm now.

6th July 
Felt tired today but I had several visitors which kept me busy. my chest was the only thing that was hurting an I felt very breathless but It did get better during the day. Its funny but it sees that for some people who haven't seen me for a long time are surprised to see me looking so well and having a full head of hair as well as a positive attitude about everything - i think they were expecting to see me bald, thin and ill. 

7th July 
A good day today only a slight tightness in the chest but that is nothing isn't it? Having a quiet day today as john wants to watch the motor racing and it's raining outside. Have felt tired today so did have a nap but sometimes I just have to give in and sleep. 

8th July 
Woke up very tired today so I sent John to the allotment as I didn't have any energy to go with him. When he came back though I wanted to get some fresh air so we went to the Framers Market in town and picked up some bits and bobs. I felt really unwell when we got home we weren't out for very long but I went to bed fully clothed as I was so cold and it took me ages to warm up. At 3pm John started taking my temperature for the next hour it continued to go up and so it was a trip to A&E. We spend 4.5 hours there having all manor of test done then they finally moved me to a ward where I was to stay overnight for observation. They decided to move me from a private room to a open ward at 0530 which was really nice!!! 

9th July 
Stayed in hospital until 2:30pm when they let me go, it was an infection of some kind but they couldn't tell me where or what type. Due to having the Hickman line they have to be extra cautious as an infection in the line can mean game over as it gets straight into the blood stream and can take a down turn very fast. 

10th July 
have been naughty today. Touched up my roots as I couldn't bare it anymore. I know i am VERY lucky to have my hair still but I couldn't bare those roots anymore I just did the top parting just so it doesn't look so bad. I think I can get away with it as my hair does seem to be very resistant. Still got hairy legs too! 

11th July 
Well today I decided I was going to see the Olympic torch today but my body had other plans. This has really knocked my for six this time round. the last few days have really shown me how vulnerable we all are. So instead of cheering on the torch I have had a very exciting day resting on the sofa but I don't mind as I am going to get better no matter what it takes, I've still go to much to do! 

12-22rd July 
Well I have been doing really well plodding along have had a few ups and downs not mentally just physically by not being able to do what i used to do but it this is the road to getting better then i don't mind. 

22nd July
Just such good news today we went and saw the oncologist and he told us that the tumour has shrunk by one third in size and I just can't believe it. I thought it was smaller but to be honest I don't like to touch it. I'm not sure if that is a natural reaction to it. I spoke to the breast cancer care nurse after the consultation and she said that i will have to wait 6 months after the mastectomy to have the reconstruction which is a bit of a downer as I am not sure I can cope for that time with one boob! I think I would rather suffer to have it all done at once. 3 weeks time I have another CT scan to see if the cancer is anywhere else, If it isn't I think I maybe be on cloud nine after todays news anyway!!

Thats all which mother wrote so that means the last few days were good which is what we like to see!
I know this post is very late but you have no idea how crazy its been getting. A lot has happened so I will try to get back on track!!! 

Thanks for reading xxx

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